In a bubble

Recently I have discovered we have been living in a bit of a bubble. A cocoon type of bubble, safe and warm. The bubble is where I don’t feel I have to translate anything for anyone else and we, my family of four can just be.

My son who is 4.5 was diagnosed with autism last year. Initially there was some shock and I cried for two weeks because I had no idea how I was going to “do” all the therapy “he needed”.

Fast forward, and I’m revelling in the discovery of my complex boy. My boy who is so joyous and good natured.
In recent months we have grown confident in our understanding of his sensory needs. This is key to a vibrant happy boy. And that means we are in a beautiful bubble.

We say “no” more often to things that we know will cause discomfort or he isn’t going to enjoy.
We are allowing him his space and trusting that if he wants to listen to toy story audio books over and over again then that is what he needs.
We plan around his need for downtime so we have plenty of time to “stay home” a request we hear regularly. And listen to respectfully.
We allow more screen time, which I never thought I would. I’m not ready to hand over the reins of the remote, but if he wants to watch something I’m not being so rigid.  Because I see how it relaxes and recharges him.
We are listening to him more, we are making connections with his sensory needs and what helps him be at his best.
We are all far happier, calmer and enjoying life by slowing down to his pace.
We are learning more about our own needs through this. I’m learning about my needs for downtime and to just be.

So for me being in this bubble is allowing us to give our son what he needs but in the bubble I have found what I need.
He has taught me to slow down and a simple appreciation for just being.
He has reminded me that the most important voice in the conversation is the one in which, the conversation is about.

2 replies
  1. richard c
    richard c says:

    Thank you for posting this beautiful insight. and guess what, doesn't this apply to all human beings. Aa father and grandad I've recently started to educate myself via these blogs and others re autism. What you have just made me realize is that your insght and experience does apply to everyone and if we could all be more present and focused on the reality at hand for us individually then everthing would fall into place a little more smoothly and in synch. thank you so much and keep up your sharing. your love is apparent through your words. all the best. Richard Cawthorne

    Reply
    • Amy Bean
      Amy Bean says:

      Hello Richard,
      Thank you for commenting. Taking the time is so appreciated. It's so wonderful to share something and have someone "get you".
      I agree so much that being present is so important. And it's hard. And working on it is so rewarding.
      How I wish more people were aware of their needs, that I'm aware of my sons.
      I'm learning about my own sensory needs, and gosh, it's like a whole new understanding of myself.
      Can I be respectfully curious and ask what interests you in reading about autism ?

      Reply

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